I posted this update on my Facebook:
First, I want to thank everyone for all of your sweet thoughts and prayers. We appreciate it so much. One of the Children's Pastors at Fellowship Church and his wife brought us a whole turkey on Saturday (along with another meal and some sides!) to put in the freezer for a later meal. We are having it tonight and it will come in so handy since we are just exhausted. Culp has been put on the prayer list there as well as at our church in East Texas, North Shore Baptist in Avinger. We are so thankful for our church family at Fellowship and North Shore Baptist.
What a day. Culp had his appointment with the Pediatric Neurologist today. The EEG was a sleep deprived EEG. Meaning that Culp was not supposed to get more than 4 hours of sleep the night before. So, Mike woke him up at 3AM and he was NOT happy. I took over at 4AM to ensure that he stayed awake. I ended up having to strip him down to a diaper and wipe him down with a wipe repeatedly to keep him awake. He was exhausted.
The EEG results were normal. So, basically it didn't detect any abnormal brain activity. We met with the Pediatric Neurologist after he had reviewed the EEG. Our next step is to have an MRI done with Culp under sedation. While the doctor was examining Culp, he noticed that Culp has a tremor in his legs when the doctor pushed against his feet. We had noticed this before but I had chalked it up to an immature nervous system. The doctor said that it definitely could be that or it could be that he is just hyper-reflexive at this point. The worst option would be that he could have a mild form of Cerebral Palsy. We didn't get deep into the discussion about that diagnosis.
It is definitely possible that the tremors in his legs and the seizures are related. If nothing else, the same thing in his little brain that misfires and causes a seizure also misfires and causes the tremors. (Mike - if you read this, correct me if I'm wrong here.)
So, we are waiting to hear back from the scheduler in the Pediatric Neurologist's office regarding scheduling the MRI. At this point, I have no idea if it will be tomorrow, this week, this month, etc. (Well, I would think it would be this month, but you know what I mean.)
I will keep you all posted when I know something.
First, I want to thank everyone for all of your sweet thoughts and prayers. We appreciate it so much. One of the Children's Pastors at Fellowship Church and his wife brought us a whole turkey on Saturday (along with another meal and some sides!) to put in the freezer for a later meal. We are having it tonight and it will come in so handy since we are just exhausted. Culp has been put on the prayer list there as well as at our church in East Texas, North Shore Baptist in Avinger. We are so thankful for our church family at Fellowship and North Shore Baptist.
What a day. Culp had his appointment with the Pediatric Neurologist today. The EEG was a sleep deprived EEG. Meaning that Culp was not supposed to get more than 4 hours of sleep the night before. So, Mike woke him up at 3AM and he was NOT happy. I took over at 4AM to ensure that he stayed awake. I ended up having to strip him down to a diaper and wipe him down with a wipe repeatedly to keep him awake. He was exhausted.
The EEG results were normal. So, basically it didn't detect any abnormal brain activity. We met with the Pediatric Neurologist after he had reviewed the EEG. Our next step is to have an MRI done with Culp under sedation. While the doctor was examining Culp, he noticed that Culp has a tremor in his legs when the doctor pushed against his feet. We had noticed this before but I had chalked it up to an immature nervous system. The doctor said that it definitely could be that or it could be that he is just hyper-reflexive at this point. The worst option would be that he could have a mild form of Cerebral Palsy. We didn't get deep into the discussion about that diagnosis.
It is definitely possible that the tremors in his legs and the seizures are related. If nothing else, the same thing in his little brain that misfires and causes a seizure also misfires and causes the tremors. (Mike - if you read this, correct me if I'm wrong here.)So, we are waiting to hear back from the scheduler in the Pediatric Neurologist's office regarding scheduling the MRI. At this point, I have no idea if it will be tomorrow, this week, this month, etc. (Well, I would think it would be this month, but you know what I mean.)
I will keep you all posted when I know something.
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